13 Aug 2014

St. Mark’s Place, NYC.

by | posted in: Day In The Life, New York City | 1
Exhibit A: Punk lighting cigarette.
Exhibit A: Punk lighting cigarette.

Of all the streets I’ve lived on in my life (are there ten? twelve?) St. Mark’s Place is the most colorful.

This is a street with a popular history. I’m sure 29th and 112th Street have their lore, and we all know about Broadway and Madison Ave., the hogs! But St. Mark’s hauls itself into the better-known of New York streets because of the now-famous punk scene that flourished here in the 70s. The American punk, an eye-catching animal, continues to slink around the neighborhood, reminding you of the history of the place. There has not been a real punk “scene” here for decades and decades, but some young punks (from Oregon, or Iowa, or maybe just Far Rockaway) come here just the same, still.

St. Mark’s Place is three blocks long. That’s it. The street starts (or ends, depending on which direction you’re walking) at 3rd Ave. and dead-ends at Thompkins Square Park, there at Avenue A. Manhattan streets are numbered going up after Houston St. in Lower Manhattan. If you’re walking north on, say, 3rd Ave., you cross Houston and hit 1st St., then 2nd St., and so on. If St. Mark’s were a number, it would be 8th St., followed by 9th, etc.

The street is named for nearby St. Mark’s Church In-The-Bowery (which makes me think of Stratford-Upon-Avon but is very far away from that place.) St. Mark’s Church is very old. The first incarnation of the church was a chapel built in 1660 by early New York City player Peter Stuyvesant and he is buried there, but we’re not here to talk about him. We’re here to talk about why there are so many kids with safety pins through their lips on my block. They would ask why I’m on their block, and I can appreciate that.

In 1967, Abbie Hoffman started the Youth International Party (they called themselves “yippies”) at a club on St. Mark’s and counterculture settled in (it has a tendency to do that quickly, much to the chagrin of all the counterculturists standing around.) The yippies and the hippies and their ilk needed places to hang out and party, so clubs like Electric Circus opened where Andy Warhol and Jimi Hendrix and The Velvet Underground all made art and did heroic amounts of drugs. But what to wear? A pair of shops called Trash & Vaudeville opened in the early 70s right in the middle of St. Mark’s. Debbie Harry shopped there and The Ramones, too, and the punk rock scene was really taking off because of bands like The Ramones, the Sex Pistols, and Damned In London, who were all singing and screaming and making music which, at the time, was a person had to admit was really fresh and amazing and different, even if you hated it. Which most people did.

For true punk people, the music was only legit from like, 1976 to 1979. This is what I’ve learned in researching St. Mark’s. But boy, did it have an effect. The look of the musicians was hard, all spikes and leather and neon mohawks and pierced everything. It was a look that said, “Back off” and “I am pretty sure I don’t like you already.” Mean? Scary? Revolting? Maybe a little of all that, but a) they achieved what they wanted, perception-wise, so you gotta give the kids credit and b) I’m sure many of the punks (then and now) are roly-poly little bunny-shaped sweethearts when you get to know them. Isn’t that how it works?

There are so many punks hanging out on the street this summer. Several people have told me there are more than usual. Maybe because the weather hasn’t been too bad. Maybe because there are good punk bands playing here in NYC this summer and they’ve all made the pilgrimage. Many of them are painful to look at, with sores and things. I wonder if they do have a place to go and choose not to go there or if they are as homeless as their signs say. I could ask, but I’m not sure that would be appropriate. Sometimes I put change in the cups.

Perhaps I could tell them I went as a “punk rocker” like five times for Halloween when I was a kid. That could be a good conversation starter. Or not.

11 Aug 2014

Changes, With Gelatin and Yogurt.

by | posted in: Day In The Life, Fashion, Sicky | 12
Homemade yogurt. Image: Wikipedia.
Homemade yogurt. Image: Wikipedia.

 

I have a mission in life: I am going to save my j-pouch.

If you don’t know what a j-pouch is, that’s good, because it means you’ve never been personally introduced. If you do know what a j-pouch (or “ileal-anal” pouch) is, you and I could sit down and talk about a lot, I’ll bet.

Either way, if you’re new around here you might want to read Part I and Part II of my health history timeline because you’ll want some background for tonight’s post. Warning: It’s not a fun tale and I wouldn’t recommend eating while reading, so put down the snacks. 

If you don’t have time to go through all that, here’s what you should know:

1) I was/am a gimp** because of Ulcerative Colitis (UC);
2) I was treated for UC but made more gimpy in some ways because of not-so-successful surgeries, each with new and exciting complications;
3) Today I am less gimpy than I was but still a gimp and now have a decision to make: Do I opt for a permanent ostomy bag or continue living with my dubiously successful j-pouch and its attendant woe?

While an ostomy bag isn’t the end of the world — I know firsthand, having had one for a total of three years — it does blow. More than what I’m dealing with now? Hard to say. But I’m not giving up my internal ileal pouch without a fight. I’m going to do whatever it takes to make my ruined gutscape look and feel like a damn prom queen. Think sunshine on a field of daisies. Think kittens frolicking in strawberry patches. Think pretty — the opposite of what I got.

*     *     *

Back in the 1960’s, a woman named Elaine Gottschall had a young daughter with Ulcerative Colitis.

Elaine and her husband lived in New York City. They went to specialist after specialist and their poor kid went on massive steroids and other drugs only to face surgery, anyway. Then the Gottschalls had a stroke of luck. They met a doctor who stared down the hopeless mother and asked:

“What have you been feeding this child?” None of the 15 docs they tried had asked that one.

“Um, food?” was the answer he got.

The doctor put little Judy on a very strict diet: zero starch, zero sugar, and lots of homemade yogurt. Within ten days, surgery was not a pressing concern. Within a year, Judy was growing like a weed, no longer bleeding, no longer living in the bathroom. The kid was better. No, no: She was a lot better.

Elaine was hoppin’ mad that her little girl had been through so much, how she had narrowly escaped being super sick and having an ostomy for the rest of her life, or, you know, dying. She decided to check out how it was that food could cure digestive maladies — and why she hadn’t known that till it was almost too late.

Elaine went to the library. She read many books. Elaine came of age during the Depression, so she never had the opportunity to go to college. She decided to go. At 47, she went to college to find out more about why the diet helped her kid and how it could help other people, too. She got degrees in biology, nutritional biochemistry, and cellular biology. Then she wrote a book. Then she wrote another book. Twenty years and a zillion testimonials later, Gotschall’s work is still in print and many lives have been saved, many more vastly improved, all through the science of nutrition as it applies to sorry souls who are smote with intestinal disorders.

Look, Elaine Gottschall was just a person. But she helped a lot of people. 

Along with some other treatments — and under the care of my physicians — I’ve begun Gottschall’s Specific Carbohydrate Diet (SCD), which is designed to starve out harmful (to me) bacteria in the gut and repopulate it with healthy bacteria. It’s a rebalancing act, a total, very much “natural” intestinal renovation. “Gut remodel” would be an appropriate, if too cute, way to put it.

Above all, it’s a major change. “Lifestyle modification” begins to describe it. I can’t use the wooden spoons I use for Yuri’s food because of cross-contamination. “Puree” is a word I have to get comfortable with for awhile. I have to eat an insanely limited number of foods the first phase of the thing, though after the first period I can start to branch out. If I thought about how I can never have chocolate again, ever, I would give up this second.

Maybe not, though.

Because it’s funny how any food becomes far less delicious-looking when it makes you cry a couple hours after you eat it.

Ninety days. Then we’ll see.

**Yeah, I can say “gimp.” We can call ourselves that, but if you’re not a gimp, you can’t call us that. 

10 Aug 2014

La Vita Belli.

by | posted in: Art | 3
Belli (pretty much.)
Belli. Our version is rounder and in my mind, far cuter. (It’s different when they’re yours.) Little Cat Puppet by Folkmanis.

I am a (very) grown woman. I own several puppets — and zero shame.

You can attribute my puppet-owning to the four years I spent studying theatre in college or the nine I spent making it in Chicago. When I was a straight-up stage actress there was a dearth of puppets in my life and I didn’t even realize what a bummer that was. When I made the exhilarating break to be a performer rather than an actor — the difference between “firefly” and “fire” — the number of puppets in my life grew exponentially and I was a happier artist. It wasn’t that I was using puppets right away, it’s that I saw them more in the art I was exposing myself to; intricate, enormous, wild, complex, frightening, and fascinating puppetry seemed to be everywhere in Chicago. When I became a Neo-Futurist, the aesthetic wormed it’s way into my work — or maybe I just came home to the first version of me I remember, maybe I found my inner Sesame Street. I put googly eyes on mittens and stuck them on sticks and did a little play called “Mitten Time.” I put a bird on a wire. I made talking boxes that flew up into the grid on a string. I strung my retired brassieres on dowel rods and sang them to their death in a little play called “Bras I Have Known.” Searching my laptop tonight, I found the lyrics to “Bras I Have Known.” Why not put them down? It’s a simple cut-and-paste and then I’ll (quickly) tell you about Belli.

This was sung (in chorus) to the tune of “Baa-Baa Black Sheep” as the actual brassieres from my life were strung up on sticks and bobbed around onstage. Shocking? Nope. Great fun.

Bra bra old bra
Opposite of young
Lace torn, cups stretched
Underwire sprung

Purple ones, gold ones
Yellow, white, and pink
Cotton, lycra, spandex,
Time to say goodbye, I think

A fine job you’ve done here
To lift and separate
Rest dear, rest dear,
The garbage is your fate

Each bra before you
Tells a story of its own
That one was there the night
Sin came free on loan

This one was present
When Jeremiah died
That one I never wore
But trust me, I tried

The gold one was funny
Never looked quite right
But I wore it frequently
Cause I thought one day it might

I couldn’t toss these out without
Offering them some art
Sure, they’re just old bras but
They literally crossed my heart.

Thus ends the lesson
And your straps on my body
Time to go pick up a new
Thirty-four D.

Good times.

A month or so ago, I popped into the toy shop on 9th Street, about a block from where we turn in our laundry. The shop is called Dinosaur Hill, and if I wanted to have a baby before I walked past the windows of Dinosaur Hill Toystore, boy, do I want one now. Little painted wooden figurines, toy trains, princess costumes. They’ve got everything. They carry many hand puppets, too: I learned this when I went inside, a (very) grown woman with no child who was determined to buy a toy anyway.

I spied a kitten puppet. She was so cute. A little small for my hand, maybe, but soft and so realistic, with wide eyes and soft paws. I surprised Yuri with it when he came home that night. We sat on the couch and I whispered, “I have a surprise for you.”

“Oh?” he said, smiling. “What is your surprise?”

Ping!

The little cat had been on my hand the whole time and I pinged it up and waved a paw by moving my pinky finger inside the puppet. Yuri laughed, delighted.

“Hello! Oh, my! And what’s your name, little kitten?”

I hadn’t decided. Yuri said her name should be “Belly” but when he said it, he didn’t think how “belly” is a tough word for me to process as cute, what with my own belly being such a battleground. Funny thing is that I didn’t for a moment think he meant “belly” with a “y.” I figured he was being brilliant and going for something Italian, so in my mind, I instantly saw “Belli” as the kitten’s name. And so it was that the little cat puppet was named Belli and she has brought us great joy since that day.

8 Aug 2014

(Just) East of Eden.

by | posted in: Art | 5
Salinas Valley, California. 2008.
Salinas Valley, California. 2008.

I made chicken with creamy pan sauce. I made a pumpkin pie. I made a batch of cookys for Yuri, (this time with white chocolate chips, regular chocolate chips, and pecans.) Right now, there are sweet potato fries in the oven seasoned with curry, cumin, and salt n’ pepper (plus some finely diced red onion) and this morning, there was a cheesy omelette for the man.

All the while, I thought of East of Eden, by John Steinbeck. I’m reading it. And if you have ever read it — or ever read any genius work of fiction, I mean really the cream of the genius crop — you know what I mean when I say I’m only half in my world. The other half of me in the Salinas Valley around the turn of the last century.

Have you read this book? Have you ever? You must. Do not delay. Put aside any non-crucial tasks for the next week and take up East of Eden. I can’t see how this novel could not enrich a person’s life.

 

Look at this:

“Tom, the third son, was most like his father. He was born in fury and he lived in lightning. Tom came headling into life. He was a giant in joy and enthusiasms. He didn’t discover the world and it’s people, he created them. When he read his father’s books, he was the first. He lived in a world shining and fresh and as uninspected as Eden on the sixth day. His mind plunged like a colt in a happy pasture, and when later the world put up fences he plunged against the wire, and when the final stockade surrounded him, he plunged right through it and out. And as he was capable of giant joy, so did he harbor huge sorrow, so that when his dog died the world ended.”

When I read that particular paragraph, my mouth popped open. I had to go read it to Yuri. “His mind plunged like a colt in a happy pasture,” I read, and the words landed in him as they had in me. “Woah,” said Yuri.

“Yeah,” I said.

The character of Cathy Ames is so terrifying, so cruel, that I am afraid of her. Afraid of a fictional character in a book! And the Trask brothers’ complex, violent, loving relationship make them more real than some people you’ve met in real life. I’ve hardly begun to learn about the Hamilton family, but it’s the Trasks and the Hamiltons who are at the core of this epic.

It’s all a juicy Bible allegory; Steinbeck said so. He also said all the books and stories he wrote before East of Eden were warm ups for East of Eden. He called it “the first book,” and he dedicated it to his sons. Steinbeck was married three times and he lived the final thirteen years of his life in New York City with his third wife, whom he loved very much. “I am in New York,” he wrote to his editor, “surrounded by love.”

I know the feeling.

7 Aug 2014

PaperGirl Rides Again!

by | posted in: PaperGirl Archive | 11
Pin for WWII Victory Girls, who were the real Rosie The Riveters, I've learned. It's not that I have a huge thing for the WWII ladies, but the images are just so great.
Pin for WWII Victory Girls, who were the real Rosie The Riveters, I’ve learned. It’s not that I have a huge thing for the WWII ladies, but the images are just so great.

Good gravy that was awful!

The server. It had problems. There had to be a migration. The migration, it had problems. I was without you. Lost. Lost at sea. Lost at sea with no peanut butter. Lost at sea with no peanut butter, no coffee.

It was horrible! And over my birthday, too! What a rip-off!

Well, anyhow, PaperGirl and the site are both back up, obviously, and I apologize for any inconvencience. If not being able to access my blog rates anywhere near an inconvenience for even a handful of people, why, I’ve made it in this world.

Tomorrow, I can begin making the changes to the website I’ve long needed to make (turns out the server problem had to be handled first, bleh) and a fresh paper — PaperGirl, that is. What will we discover, friend? I’m considering observations on anything from Door County, Wisconsin, to turning [REDACTED] years old yesterday, or perhaps I’ll offer Reasons To Adore Yuri, or explain the kitten puppet I bought and named Belli. I promise no politics, no people-bashing, and no harsh language

Does that make my blog frivolous?

It does??

Welcome home, baby!

2 Aug 2014

New York: Where Your Twin Has Been Living Since 1985.

by | posted in: Day In The Life, New York City | 0
Woman on subway, NYC 1973. Photo: Erik Calonius, US National Archives.
Woman on subway, NYC 1973. Photo: Erik Calonius, US National Archives.

My Big Apple bedazzlement continues.

In 2013, the Census Bureau reported 8,405,837 million people living in New York City. If nothing about that number has changed except that me and Yuri moved here, it’s now 8,405,839. If you count my sock monkey in the number, which you should, we can get to a nicer, roundish number of 8,405,840. I’m confident Yuri, Pendennis, and moi are not the only changes to the New York City population since last year, but this is why its funny.

All of these people. There’s one of everything.

I play a little game when I’m out and about. When I see someone totally one-of-a-kind, or outlandish, or remarkable in any way (and everyone is remarkable in some way) I note their characteristics and then try to imagine imagining them. Like:

“Could there be on this earth, at this moment, a person who is a nun, around fifty years old with pink socks, a guitar, and a suitcase with a Grateful Dead sticker on it? Could that person possibly exist in this wide, wide world?”

Then I answer myself that yes, there could plausibly be such a person because in that moment when I’m asking myself, that means I am looking at a person who matches that exact description. The nun was standing in front of Penn Station the other day, waiting for a bus, I assume. Then I play some more.

“Does a person exist who has a spiderweb tattooed on his face and wears corrective shoes?”

Yes, this person lives on my block. Yuri and I call him “Spiderman” and he is frightening to behold. He is acutely homeless.

“Could there be a 4’5 Asian-American girl with a panda backpack and a tattoo of a Pac Man ghost that covers her entire leg, who is screaming at her boyfriend that she wanted peanut butter froyo, not caramel froyo, dammit Reggie????”

Yes, that argument happened about an hour ago out on St. Mark’s Place.

“Is there a male model whose girlfriend is also a model, and are they both wearing large hats and are they both wearing all denim, and are they both Serbian?”

Yep, and yep. Just another piece of the crowd on any given day.

And consider what you’re wearing. Right now, look at your outfit. Someone in New York has that exact thing on, I’m telling you. I can’t say I’ve seen them in it because of course, I can’t see you in it. But someone has it on. They might even share your name.

There’s only one you, but New York gives that concept a run for its money.

1 Aug 2014

On Overalls — Not In Them.

by | posted in: Fashion, Rant | 10
Where do I start?
Where do I start?

Amazing!

The mere mention of overalls on women in yesterday’s post inspired comment from both sides of the pant leg. I had no idea this would be so polarizing an issue!

The issue: Can a grown woman wear denim overalls and be taken seriously?

We could phrase the question many different ways. I initially conceived the issue to be, “Can a grown woman look attractive in denim overalls?” but that’s easy: Of course she can. A woman in love can look stunning in a paper sack.* A happy, healthy pregnant woman in denim overalls can look glowy and radiant, too. And if you’re someone with a thing for it, you’ll find any female in overalls (that original onesie) to be straight up hot. To each his own sartorial kink.

We could also ask, “Is there a grown woman on the planet who feels attractive in denim overalls?” but this shows my personal bias. When I have worn overalls, I have felt about as attractive as a caterpillar’s ass. This is due to the realities of my body shape. I have an ample bust and a derrier to match but I do possess a waist — for this, I thank Zeus every day. What overalls do to me is cruel. They eviscerate any hint of a waist. I become a stovepipe. A meaty, Viking, insty-stovepipe who looks like she ought to be butchering a moose with one hand while folding lard into biscuit dough with the other, all while sweating something smelly, like…goat’s milk. None of what I’ve just described makes sense. But neither do overalls on women in urban places in 21st century America! They’re confusing! They don’t understand their reference point! There’s absolutely nothing that works, here!

Are you working? In dirt? No!

Do you have breasts? Yes! You do! A square panel that rests mid-boob is uncomfortable and aesthetically problematic!

I have worn high heels that were impractical and painful but man, did my legs look fabulous because the shoe’s shape elongated my leg. I have donned chandelier earrings from time to time because dammit, I look like Cleopatra in them. Fashion is frequently impractical and silly, but in the case of almost anything other than denim overalls, there are reasons we suffer. Lines are lengthened. Curves are accentuated. The female shape is celebrated or made more mysterious. I’d like to challenge any female on earth — yes, every last one of you — to make denim overalls look mysterious.

[pause]

Mm-hm! Didn’t think so.

Every few years, Fashion declares that overalls (“coveralls” if you hail from certain farming communities in the Midwest where such garments make perfect sense because that’s who they were designed for) are “back.” Pictured above, overalls currently on offer from company that I adore. Reformation makes clothes out of materials considered “deadstock” by other fashion companies: when clothing manufacturers and designers order way too much fabric (this happens all the time) Reformation will use that material for their designs rather than have more made/shipped, etc. It’s a green strategy and the clothes are so great.**

But Reformation. Come on. That model is so pretty. She is so thin. And those overalls are made of nifty denim, possibly taken from some high fashion house like Isabel Marant or Band of Outsiders. You all have done your best! But… I mean… The crotch. It’s so squinchy. And this young woman, she has such tiny boobies, but they are still managing to slowly seep out the sides of her little denim overall’s…frontispiece. I reject your stylist’s choice of shoes here, but could I do any better than that plasticky clog? What is better? Sneakers? A strappy sandal? No! Nothing works. Nothing works because the overalls are all wrong.

I open it to you, reader. Defend your position. Because I’m over(all) it.

Get it? “Over” it? “Over(all) it”? #stoptyping

*I love to think about a woman so in love, she forgets to get dressed when she leaves her lover’s house in the morning. The baker sees her, gasps, and hands her a number of paper sacks to put on. All day, everyone wonders where she got her outfit, if she’s lost weight, what’s new with her, etc.

**I’m wearing a polka-dot Reformation skirt as I write this. I feel very attractive in it!

31 Jul 2014

A Laundry List (or Two.)

by | posted in: Day In The Life, Luv, Sicky, Tips | 10
Free label, letters by me. Oh, to have a full-time graphic designer on staff. Oh, to have a staff.
Free label, letters by me. Oh, to have a full-time graphic designer on staff. Or a staff!

I saw a woman wearing denim overalls today.

Though I would like to write about how every few years the public must endure Fashion’s attempts to make denim overalls cool (oh, how they try and fail!) and how this is just silly and I can’t believe we haven’t learned to ignore Fashion on this, I think that ought to wait till tomorrow. To go straight from talk of ambulances and surgeries to ill-fitting overalls is not nice. It’s like going from a popsicle to a steak. Jarring. Rude, in some cultures.

And so as I went about my day today, I tried to think of a good bridge. “I could write about what I’ve learned since getting sick,” I thought, and mentally wandered down that road. But on the way I came upon all the things that I feel more confused about, and things that I observed that didn’t necessarily teach me anything so much as simply surprised me.

So tonight, a few lists; tomorrow, overalls.

My Oprah Winfrey, “What I Know For Sure” List
– The saying, “What doesn’t kill you makes you stronger” is bizarre and largely untrue. More often, what doesn’t kill you leaves you weakened, compromised.
–  You can get used to anything.
– There is no time. You must do it now.
– Being in a hospital blows. Stay out if you can, but if you must go in, pack a bag. Take your phone charger, your sock monkey, your journal. Take your glasses (if you wear them), your laptop (if you use one) and anything else you would want if you have to be there for long. As bad as you feel, try, try, try to pack a bag from home to take with you. It will bring you great comfort when you wake up.
– Visiting people when they’re in the hospital is one of the kindest, nicest, most lovely things you can do for a person. I remember every last person who came to see me. Thank you. It meant everything, every time, bless your hearts forever and ever. (Rebecca, if you’re reading this, I’m looking at you right now especially. You too, Bilal.)

Curiosities
– I’ve seen myself from the inside out: I have handled my own intestines. I am kind of a badass.
– Very few people in the Eastern hemisphere get UC or Crohn’s. These are maladies of the industrialized West. One day we will know why and keep people from getting sick like this.
– Losing my hair really sucked. It came out in clumps in the shower. That was one of the worst times in terms of feeling attractive (or not.) The stoma was rough; in some ways, losing my hair was harder. A female thing?

Disappointments
– In a hospital in Tucson, AZ, in ’09 or ’10 (ER trip while visiting then-husband) I looked at my frail, perforated body and all the medicine bags hanging around my head and thought, “I will never, ever hate my body again or tell myself I should lose five pounds when I don’t need to.” But I still do that.
– You can’t go back. You can never be ten years old again, happy, healthy, running through the yard in bare feet.

Funny Things
– I have my very own semi-colon.

29 Jul 2014

Timeline, Part 2.

by | posted in: Sicky | 28
Sweet n' lowdown.
Sweet n’ lowdown.

As the well-wishes and words of kindness came in last night/today regarding yesterday’s post, I felt subdued and grateful. I also became concerned that the sharing of my UC story thus far was potentially taking up too much air time in people’s heads, thoughts, prayers, etc. I shared the first half of the timeline with a desire to inform, possibly assist, and maybe even entertain (seriously, you can’t write this stuff.) But when the compassion came at me from all sides I suddenly felt guilty that I had directed all of this energy at myself when really, we’ve all got botched j-pouch surgeries. We’ve all got a health crisis.

We are all temporarily abled. That’s not just a politically correct catchphrase: it is one of the truest things I know. Our bodies are systems; systems fail. We are organic matter; organic matter gets infected, infested, and eventually rots away. There’s nothing to be done about it and to preface it all by saying, “Sorry to be morbid, but the funny thing about bodies is…” is to keep the yardstick in place that distances us from the reality of our rather absurd situation. It is my fondest wish that every person reading this is full of vim and vigor from their first day to their last, but it’s more likely that most of us will deal with significant health issues somewhere along the trek. Sooner, later, or now.

So hang my tale: we all need compassion. By virtue of being human, we all need loving kindness. It’s hard down here. And that’s when we’re healthy and well! Beyond that, many of us have diseases and afflictions that do not call for surgery and never will. There are those among us who are quite sick indeed but look perfectly fine. Those people need emails of encouragement, too. They need blog comments. And so it was that I felt I had gotten too much of the universe’s healing energy yesterday and today. I will send some along to the next fellow with your regards; maybe it will come back to you, as you also need it. Sooner, later, now.

With that, let’s dive down into the second half of what happened so far in my life, vis a vis being sick. When I returned to Chicago in ’09, things took a turn from awful to downright horrid.

Summer ’09 – My then-husband leaves for a year to train for the Army Reserves. A decision we made together proves disastrous. He was away, my entire world/existence was changing daily. A gulf formed that would never again be brooked.

August ’09 – I am declared well enough for the “takedown” surgery at Northwestern. The ileostomy (stoma) I had is poked back inside my belly and reconnected to the internal j-pouch. In theory, I should be able to continue my life now, albeit with a “new normal.”

September ’09 – My health rapidly deteriorates following the takedown. Turns out the leak has not healed. Waste is leaking into my abdomen from the pouch. I am hospitalized — can’t remember how many times —  over the next few months. (Silver lining: I begin to make quilts for sanity preservation.)

October ’09 – “Bio-glue” is squirted into my j-pouch in attempts to “plug up” the leak. Bio-glue is what they use to glue heart muscles back together after surgery, apparently? While the glue does its thing, I am told “No food allowed.” A PICC line (my third; a mega-IV that is inserted via ultrasound into your arm and travels through a major artery to dump medicine/food directly into your vena cava) is placed and I am put on total parenteral nutrition (a.k.a., TPN, a.k.a., “feeding tube”.) Twice a day, I hook up a gallon bag of white fluid into a port in my arm and sit still while it is pumped in. I have several IR drains, as well. I am a ghost among men.

November ’09 – TPN and bio glue deemed a failure. Pouch needs more time to heal after all. I will be re-diverted. (Translation: I will get another stoma.) Surgery at Northwestern. This time, I get an epidural. A psychiatrist visits me in the hospital post-surgery and recommends I go on an antidepressant. I take her up on that.

December ’09-’11 – Life continues apace. My marriage falls apart. I continue to work as a freelancer, building Quilty and doing work in the theater in Chicago to take my mind off my health issues and my broken relationship. Bag leaks in bed, painful rashes, etc., are par for the course with the second stoma as with the first but it’s a known quantity, at least. I begin to practice yoga with obsessive drive: I make deals with the universe that if I get healthy enough before the second takedown a year from now, I will make it.

June ’11 – Second takedown. Northwestern. Epidural. Things go well.

Fall ’12 – After a shaky but decent year, things begin to crack. I have a fissure. I also have a fistula. (I leave those things to you to look up. Do not image search.) Various methods are deployed to deal with these issues. I work harder than I should, afraid at any moment of hospitalization. There are several, usually related to the fistula or flora issues in my ruined guts. I make a series of self-destructive choices. I am wildly productive.

Fall ’13 – The fissure has come home to roost. I am crippled with pain. An ambulance comes to my condo to get me on the worst of the nights; they break my front door. I get into a pattern where I know when the fissure is about to do its worst; I frequently take the bus up Michigan Ave. to the ER. Hospitalizations. Pain medicine. Lying to everyone about how bad it is. Describing the pain to someone, I say it’s “like having a gunshot wound that you sh-t battery acid out of approximately twenty times a day.” (I stand by this description.)

Then, up to now – Good days, bad days. I got a pain doctor who recommended an internal pain pump. This is a morphine drip, essentially, placed into my abdomen, which I then pump when I feel the agony coming on. I decline, not yet ready for another apparatus. Probiotics. Lost days. Days packed so full, no one will notice the ones when I’m useless.

Remember, this is the timeline of the health crisis. One only needs to look back at PaperGirl, or the issues of Quilty magazine or the shows, or the other shows, to see that life has been much more than just this list of woe and setbacks. Joy and wonder, and gifts abound in my life. Success and learning and all kinds of wonderful life has been lived since 2008. And there have been all sorts of failures and good, old-fashioned crappy (hey!) days that had nothing to do with any of the body stuff, too — that’s the real kicker. Good, bad, or otherwise, though, this timeline is a specter. My experience and condition don’t define me, except that both kind of do.

I am going to make cookies for Yuri now. Good grief! [Correction: Cookys! I meant cookys!!]

28 Jul 2014

Timeline, Part 1.

by | posted in: Sicky | 23
This slice of birthday cake is the image for this post IN DEFIANCE OF PAIN!
This slice of birthday cake is the image for this post IN DEFIANCE OF PAIN! (Ironic note: I can’t actually eat birthday cake. Frosting, maybe.)

For folks who might be new to PaperGirl and/or my intestinal odyssey, I thought it would be appropriate to offer a brief timeline of events. I write it down less out of a desire to, you know, write it down, than to inform those who without it might draw incorrect conclusions about the trajectory of my illness or fail to see the pretty extreme case it represents. Most people do not experience the trouble I had with all this. If you thought what has happened to/with/at me is what happens to anyone with UC, you would be (blessedly) wrong, even though there’s no good way to have this intestine-chewing chronic condition.

It’s remarkable to me how many people, upon learning that I have experience (!) with ulcerative colitis, will say, “Oh, dear. My [family member, kid, self] has had Crohn’s since 2006; I know just what you’re going through.” Too many people say this. [EDITOR’S NOTE: Oof, that came off wrong, I think. I meant that “too many people have these diseases,” not that too many people offer their empathy! Heavens!]

Warning: I’m not going to mince words, surgeries, or diagnoses. Again, in the interest of providing information for those who are perhaps facing a diagnosis, or for those who care to know more about a worst-case scenario, I’ll give you the straight dope on what’s happened to me up to the present day. It’s like I’m donating my body to science without having to die! Yet!

August 2008 – Over the course of several months, the weird symptoms I had experienced on and off for years grow grim: I am passing quantities of blood and what seem to be chunks of tissue. The month or so before I go to Mayo Clinic, I am using the toilet 30 times a day.

September 27th, 2008 – My wedding day. No symptoms. Blissfully happy.

October 20th – Mayo Clinic. Drive through the night. Doc takes one look at me and sends me to ER. I am put on heavy steroids and NPO (“nothing by mouth,” not even water, for fear one sip will burst my colon) for seven straight days; this does exactly nothing to my colon, which is “in shreds,” as one doctor put it. I am diagnosed with advanced ulcerative colitis.

October 15th-ish –  Surgeons tell me I have two options but really only one option, since the steroids are not working: J-pouch surgery. This is where they remove your entire large intestine and fashion a new plumbing system for you out of your small intestine, called a “j-pouch.” While this new plumbing heals inside your body cavity, you pass waste through a temporary ileostomy, or stoma. A piece of my small intestine will come out of my tummy and I’ll wear a bag, in other words. I “choose” the surgery. I ask when it will be. “Tomorrow,” says the surgeon, and I sign on the dotted line. It snows in Minnesota that night.

October 20th – Surgery. I wake up screaming. Insufficient anesthesia.

October 20th-November 20-something – Everything that can go wrong has gone wrong. I have abscesses, infections. There is a leak in the new plumbing. This is not typical. An NG tube is placed. A PICC line is placed. Many IR drains are placed. My insides are “bathed in pus,” as a later doctor would say. TPN (feeding tube.) Thirty-pound weight loss. Horror show, fun-house-sized syringes extract fluid and pus from my abdomen. Stoma separation occurs, which means my tummy pulls away from my stoma and there’s an infected moat around the thing. My then-husband and mother are living at the hospital, basically. I am on a Dilaudid pain pump and live in a world of stoned dread interspersed by visits from residents with bad news. Mom asks lead surgeon if I’ll die. “I don’t think so,” surgeon replies.

November ’08 – Home to Iowa. Full-time care needed. Mom flushes drains daily. Husband gives Heparin shots. Everyone is depressed.

November ’08 – February? March ’09? – Skeletal. Sick. Why am I not getting better? Trips to Rochester, MN through ice and snow. I remember very little, then or now, of this time.

Spring ’09 – Return to Chicago. Ditch Mayo for Northwestern. Infectious Disease team finally cures the bacteria swimming in my gut. I begin to eat again. Stoma healed.

…and I actually have to pause here because this is when the really bad stuff happens and I’m a little exhausted from recounting this much, frankly.

Second half of timeline tomorrow, if you dare. Get some cake, maybe!

27 Jul 2014

“What’s Up, Doc?”

by | posted in: Day In The Life, Sicky | 22
You're fine.
You’re fine.

Moving to a new city means finding a new salon, a new grocery store, a new bank branch. For me, it also means finding new doctors. On my shopping list: GI, OB-GYN, primary care, anesthesiologist, and possibly a colorectal surgeon, but I was crossing my fingers that last one could wait. Looks like not.

It’s not that I want to have all these doctors. I’d like to have zero doctors (no offense to any physicians out there) but that’s not realistic for me. My case file is the size of an oak tree stump: I need people with stethoscopes in my life. And so I did some hunting and found a primary care doc I like and he has so far made good referrals to me.

On Wednesday, I saw my new GI. It was my second visit. He was wearing a bow-tie this time. If he had been wearing a bow-tie on my first visit as well, I might not like him as much as I do. But he is a man who clearly varies his bold neck-tie choices; this causes me to put more confidence into him as a physician. Sure, it’s solid reasoning.

Dr. L. is concerned about me. I’ve got some issues that aren’t going away since my last surgery in 2011. Sometimes they hang out off in the distance, sometimes they creep into the frame and cause real trouble, sometimes they come in and kill everything.

“Have you ever considered…” Dr. L. paused, and set down his pen. What he was about to say required full eye-contact.

“Have you ever considered going back to the ostomy?” he asked. He paused. “Choosing a permanent ostomy, I mean?”

I didn’t say anything. “Choosing” is not a word that has come into play much in the years since I was diagnosed with ulcerative colitis. Not in doctor’s offices.

“The troubles you have, they would go away with a permanent ostomy,” Dr. L. said. “It’s a big decision, I realize that. But…” I was staring at my feet. My feet were dirty because I live in New York City now and New York City is filthy and I was wearing sandals. My feet looked cute and filthy. I thought about how my sister and her fiance Jack went to Tokyo for New Year’s and Rebecca told me all about how in Tokyo, there are no garbage cans. Everyone packs their trash in little bags and throws everything away at home. Toyko compared to New York!

“I’m not sure I’m ready for…” I trailed off. “I don’t know.” My voice was a croak. The ostomy. Permanent. I thought I was done.

My throat felt tight and hot. Though my body is often weak and I live an inconvenient, painful, and senseless physical existence (as it relates to my guts) 80% of the time, the one thing I have going for me is that there is not, presently, a bag affixed to my abdomen that catches excrement that oozes out of a pulled-out piece of my intestine. I did have one of those bags and one of those pulled-out pieces of intestine for about three years, in total. Not great.

But what I deal with now is also not so great.

“Do you think,” asked Dr. L., “That your partner would be okay with something like that? Do you think he would be…understanding?”

My heart clenched. An inward moan. Yuri.

“I don’t know. I’m not quite ready for that, Doc,” I said. No crying, no crying. “He’d be wonderful, sure, but… I’m just not. He’s younger, you know, and I just, ah…” Tears were forming and I needed to stop the conversation immediately. “I’ll think about it.”

“Okay,” said Dr. L. with a kind smile. “I’d like you to see a colorectal surgeon about a treatment we can do for you in the meantime.” He then explained the treatment, and I was glad he did because it’s so awful, it got my mind off the ostomy. I could instead be horrified by what the surgeon will do to me (for me?) in a few week’s time. Much easier to focus on that and my filthy feet.

“Thanks, Doc,” I said, and got the surgeon’s name and number. “I like your bow-tie, by the way.”

“Thank you,” the doctor said, and went out the door. I hopped off the exam table, removed my paper gown, and got dressed to go back out into the city.

26 Jul 2014

“The Picture of Health”

by | posted in: Sicky | 7
"The picture of health."
“The picture of health.”

It’s not often one does a google image search and comes up totally empty-handed, but if you’re searching for something truly obscure, it’s possible that there will be a “No results found for [blank]” message. To give you an example of how rare an occurance this is, I tried to think of something that for sure could not turn up any image results whatsoever. I typed in “Beckett peanut butter sandwich.”

Tons of results. Thousands.

It came as a great surprise, therefore, when I entered in (in quotes) the common phrase, “the picture of health” to find an image for this blog post and got the “No results found for ‘the picture of health'” message. Really? That surprised me. Though there were images for the picture of health without quotes, they were not what I expected, really. I suppose I thought I’d get beaming cherubic children, or expensive stock photographs of doctor/patient interactions, etc.

The best of the lot was the above picture from the Department of Health Sciences and Technology in Zurich. It’s unclear what’s going on, here, but there’s at least one object visible there in the office that one is not allowed to touch; judging from the intricacy of the robot-lobster the older fellow is strapped into, I suspect there are a few more.

I wanted to find a picture of the picture of health to be ironic. I’m not exactly the picture of health but I’m better than I was on Monday. This whole week was a bit of a wash, I’m afraid. When I was actively feeling very poorly, I was flat on my back. That was a couple days. Then there was a Doctor Day, when I got some disturbing news that I’ll share tomorrow (too tired, psychically and physically, at the moment, to go there), and then there were a couple days of Getting Back on My Feet. Today, I was hale and hearty enough to finish a quilt top and eat some chorizo scrambled eggs, so I’d say ground has been gained.

Thank you to all the well-wishers — you shall be justly rewarded. I’m not sure how or when or if I’ll have a lick to do with it, but surely something positive must come when we send funny texts and things to those who need a laff.

24 Jul 2014

Why I Love Jennifer Paganelli.

by | posted in: Day In The Life, Paean | 8
Paganelli, with George. Promotional photograph.
Paganelli, with George. I sat on that bench!

I have made a new pal this year. Her name is Jennifer.

Jennifer is a rawther famous fabric designer, and I might’ve met her at Quilt Market, or maybe at an industry cocktail party (not that I go to those all the time but it’s possible.) We didn’t meet that way, though. I first met Jennifer Paganelli outside a train station in Connecticut.

One day last spring, a mutual friend and I were invited to her home for the day, because that’s how Jennifer Paganelli is: if you’ve passed a basic-level “this person is not a psychopath” test, she is more than willing to make a seat for you at her (fabulous) dinner table. And so it was that my friend and I took the train from New York out to Connecticut and Jennifer met us at the station in her car. I remember she had this great navy blue, boat-necked sweater on. (Why do we remember these things and not other things? I don’t remember how she had done her hair. And isn’t it funny how we often stress about our hair when it’s the sweater everyone remembers.)

When I first started making quilts, I was as dazzled as anyone else by the amount of gorgeous fabric in the world. It was 2008, and I had a stash to build. My local quilt shop, Quiltology, was run by my friend Colette, and Colette had excellent taste. She stocked Kaffe Fassett, Joel Dewberry, Kona Cottons in as many shades as she could fit, and bolts of other fabrics by great designers who, for this quilter, absolutely provided the inspiration needed to get started on making quilts that didn’t look like my mom’s. If you’ve heard me lecture, you know that a) I love my mom, b) I love my mom’s quilts, and c) I don’t want to make my mom’s quilts. The fabric I found at Quiltology and online was the beginning for me in finding my own path in the art, and, eventually, in the business.

Jennifer Paganelli prints — there were many on offer at Quiltology — are in all my first quilts. Her fabrics are in a lot of my later quilts, too. Heck, I think there’s one in my latest latest quilt, the one in my machine right now. These are fabrics full of color, whimsy, good-humor, and generally full of life. Basically, the woman’s fabrics are like the woman herself. And her extremely large dog, George. He is also full of whimsy.

At the house, we spent time in her archives, looking at just some of the amazing vintage textiles she collects. It was upstairs in a studio room where I spied of the original fabric that I had used years ago in my first quilts. If you’ve ever tried to squelch a fangirl moment, you know how I felt. Jennifer and our friend were checking out something on the other side of the room and then I squawked. It went something like this:

ME: Oh, wow! Sorry. I know this fabric. I had this in a couple quilts and actually, you know, the laminate version… I put that down as the liner in my silverware drawer for several years. That’s like… That’s like my life, that fabric.

JENNIFER PAGANELLI: (looking over, smiling.) How cool is that?! That’s great!

ME: It’s so cool you designed this. That is…cool. Wow.

I’m saying I was real smooth, is what I’m saying.

Throughout the day, Jennifer absolutely showered my friend and I with gifts (I have a Sis Boom skirt and an apron combo I wear when I’m baking that Yuri likes quite a bit) and then her husband made an absolutely delicious dinner for everyone. There was tender, juicy meat involved, fresh vegetables, and also ricotta cheesecake, which, coming out of the oven the way it did in that big beautiful farmhouse in Connecticut, it may have been illegal. Some old vice law on the Connecticut books was surely violated when that pillowy, sweet-but-not-too-sweet ricotta masterpiece was placed on the marble countertop. Oy.

Way more important than all these (oft-literally) material things to a new friendship, though, is the other stuff. Jennifer has become a true friend because she is a good listener and because she has great compassion for humans. She is also really funny and her life, from what I have surmised, has all the trappings of a well-lived-so-far life: joy mixed with suffering mixed with change mixed with survival mixed with joy.

And so this is my blog post about my friend Jennifer Paganelli. Thanks, Jen, for helping me out. I woke up today wanting to do something out-of-the-blue nice, just because. I woke up wanting to do something you would do.

22 Jul 2014

Girl Down.

by | posted in: Sicky | 9
Image: National Archives and Records Administration.
Image: National Archives and Records Administration.

I am unwell.

Tomorrow, the doctor. Until then, enjoy the above picture from the National Archives of one Miss Elizabeth L. Gardner, WASP (Women’s Airforce Service Pilot) pilot of Rockford, IL, as she “takes a look around before sending her plane streaking down the runway at the air base” at Harlingen Army Air Field, Texas. Photo taken sometime around 1943. Isn’t she something?

And for those who want more, more, more, how about this quote from Rebecca West, which I had tacked up on my bulletin board in Chicago for the better part of two years after ripping it out of my planner from the year that came before that. I think there was one period of time I heeded West’s inferred point (that a life lived pleasurably, even hedonistically, is a solid choice) but I don’t recall people around me liking it very much.

“I take it as a prime cause of the present confusion of society that it is too sickly and too doubtful to use pleasure frankly as a test of value.”

And you, darling. How are you feeling?

20 Jul 2014

How To Watch Yourself On Camera: 5 Easy Steps

by | posted in: Tips, Work | 6
Screenshot, Quilty. Season Three, maybe? My head is 10lbs more pointy in this picture than it is in real life. Also, I have 10lbs better posture in real life.
Screenshot, Quilty. Season Three, maybe? My head is 10lbs more pointy in this picture than it is in real life. Also, I have 10lbs better posture in real life.

Sometimes, I think I must be out of my mind to do what I do for work these days. I’m on camera a lot and I find it painful to be on camera. Why? Because:

– Whatever you’re wearing, however you style your hair, that version of you is out of date by the time the show airs and forever afterward. You’re like the new car that’s just been driven off the lot — and no one likes a depreciating car.

– I’m not sure the camera adds the proverbial 10lbs or not, but there is most certainly a widening that takes place; an unfortunate spread of oneself onscreen. Is it the worst thing to look a bit more zaftig than you are in person? No. Does it feel unfair when you’ve been working hard to keep fit precisely because you know you’ll be on camera in the near future? Yeah, it does. [Note to self: First time using ‘zaftig’ in blog, possibly first time using it anywhere. Mark in planner.]

– You think you sound one way, but you don’t. You sound that way.

– Editing can delete a multitude of sins, but you can’t edit down to nothing. Thus, the horsey laugh, the bad habit of interrupting, the weird thing you said weirdly — it’s all on tape. Forever.

If you find yourself having to be on camera anytime soon, don’t despair. I have come up with five ways to help you cope with the trauma. Here now:

Mary’s Top 5 Survival Tips For Watching Yourself On Camera

1. Enjoy several alcoholic beverages before you begin. Everyone looks better after a couple drinks, right? This applies to you watching you. If you can get to the point where you start hitting on yourself through the screen, you’re in a great place.

2. Have a friend watch with you. This needs to be a friend who loves you so much she/he can withstand two of you for the duration of the video. Put them in your will if they agree to this.

3. Worried about your hair or clothing choice? Those potential blunders fade quickly when you realize you were younger then than you are now. Instantly wistful and desirous of that outfit, now, aren’t you? Mm-hmmm.

4. Oh, come on. You must’ve said something humorous or intelligent. Find that instance and play it multiple times. Then let the video continue while you go to the bathroom or get more snacks/vodka.

5. Go watch a bunch of Beyonce videos. Isn’t Beyonce amazing? There you go, much better.

18 Jul 2014

You Think I’m Kidding: Starting A Band With The Russian.

by | posted in: Art, Day In The Life | 7
James Taylor and Carly Simon "at their Vineyard home." Photo, Peter Simon.
James Taylor and Carly Simon “at their Vineyard home.” Photo: Peter Simon.

Yuri plays the piano brilliantly.

I sing…passably.

We’re probably going to start a band.

Living in New York City, it’s required by law that you have a gig one night a week. It can be anything. Smack fish on your head to Metal Machine Music outside La Mama; present a tinikling showcase in Tompkins Square Park; host a series of one-woman one-act plays on the subway — sky’s the limit. And fear not: if what you do is poorly attended, all the better, as this means you must really want it. 

I’m kidding about starting a band or a duo act with Yuri — kinda. I’ve made up songs all my life but, never being formally trained to play an instrument, all songs I’ve “composed” either stayed in my head or died immediately on the mental/vocal vine. My love of writing poems is a result of my love of writing little songs — or the other way around. I like words, so I like to play with them in all kinds of ways. When words have different tones (a.k.a. become songs) well, that’s terrific.

The other night, Yuri and I went to go see a singer at Joe’s Pub. She was wonderful. Floanne was her name; she is French. We went because Yuri was having trouble getting a bike out of the Citibike docking station the day before the show, when a pretty lady approached him and helped him out because that is what happens in New York City constantly, as I have discovered.** The pretty lady was Floanne. She gave him a flyer after helping him with the bike. “Eets a good show for a date,” Floanne said with a wink. Yuri brought the flyer home and said, “Baby, I’ma take you out tomorrow night!” And sure enough, he did. Boy, did we have fun. And there was a big screen onstage for live tweeting during Floanne’s show and I tweeted that we were there because of the bike assistance incident. Floanne is now following me on Twitter.

Where was I?

Oh, right: Yuri and my plot to become the next Carly Simon/James Taylor musical power couple.

The first song on the album is going to be my song about Shipshewana. When I was there last month for the big quilt festival, I drove in from Chicago. As I got deeper and deeper into Amish country, I got more and more inspired. The fields were verdant! The sky was blue. And I had been told by someone that the county is a dry one, which means you can’t buy or sell alcohol. Like, maybe at all? I’ll have to check on that one. It didn’t bother me much: I didn’t have plans to do any drinkin’, but I started singing this song about Shipshewana, a kind of ode, but real Judy Garland-y, and it went like this:

“The cows are lowing/the traffic is slowing,
The buggies are all on the shoulder!
There’s lemonade to be had/and that ain’t so bad
But it’s Saturday night/alright, alright,
And whatchoo gonna do?

[CHORUS] So.. Whatcha’wanna do/Shipshewana, you
Whatcha’wanna do, tonight?
Can’t drink
Can’t smoke
Caaaaaaaan’t even dance
So whatcha’wanna do…tonight.”

It’s a real sweet-sounding song, so please don’t read those lyrics and think I’m dogging on Shipshewana. I love it there. It’s just a song about not doing all the things that most of the rest of the state of Indiana is probably doing on a Saturday night. It’s really fun to say the word “Shipshewana” and it’s even more fun to sing it and rhyme it with “whatcha’wanna.”

Now if only we had enough money to buy Yuri a baby grand and a whole other apartment to put it in.

**It’s not that pretty French singers constantly come to your aid in New York — it’s people in general who do. You’ll have to go to Paris for more pretty singers per block…maybe.

17 Jul 2014

Mmmpink.

by | posted in: Work | 0
The first book in the American Girl Doll series for Civil War-era girl, Addy. That would be double-pink she's rocking.
The first book in the American Girl Doll series for Civil War-era girl, Addy. That would be double-pink she’s rocking.

The webinar series I have begun is proving to be as educational and groovy as I thought it might be. The next installment is next week, Wednesday, July 24th. The time of the show changed from the afternoon slot we had last time to accommodate those who wanted an evening time slot this time. At 8pm EST tomorrow night, it’s showtime. (Is that prime time?? I think it is! Very exciting.) As always, you don’t have to watch the thing live; you can download it whenever you please and watch it whenever you please.

Next week in the Color Me Quilter webinar series, I will examine pink in American quilts and help you use pink in your own quilts. We’ll talk about cool toned pinks (“bubblegum” pinks popular in the early 20th century) vs. warmer toned ones (“double pink,” a.k.a. “cinnamon pink” all the rage during the Civil War) and we’ll look at the pink stars of the quilt shows — think Rose of Sharon quilts, charm quilts, and countless baby quilts, of course. Goo-goo, ga-ga.

As for me, well, I adore pink. Slavishly devoted. If stopped on the street and asked what my favorite color is, I would have to say red, “in small doses.” But doesn’t that mean pink is, by default, second in command? And if I prefer red, meted out, might I accept pink in waves? Why, yes. Yes, I would. Do. Give it to me.

The calmness of pink. Its wink. The quiet power of pink and its allies — for you don’t put garish bright yellow with pink, or a crazy Kelly green, not if you’re wise. Pink needs gentleness around it; all goofiness must go. So pink attracts like minds. And I like pink’s mind.

Join me for Color Me Quilter. Wednesday next week. Let’s spend time together and geek out about our quilts. Let’s get inspired by the color cool enough to not even want to be red.

16 Jul 2014

You Should Know: William Soutar

by | posted in: Poetry, School | 2
Scone Palace, Scotland. (Guess what's for breakfast?? Wakka-wakka!)
Scone Palace, Scotland. (Guess what’s for breakfast?? Wakka-wakka!)

Though I’ve had to take a wee break, I am still working toward my Master’s degree. My advisors have informed me that Columbia is the place to continue the MLA I began at the University of Chicago; if I can get in, stay put for long enough to do the work and not get sick for any length of time, why, I might just be able to get that ol’ girl done. I have a ways to go but I also will probably not die anytime soon. I’m saying there’s time.

I’m not wasting precious reading hours while I get my ducks lined up, though; there’s thesis research to be done and I’m doing it. I know what I want my thesis to be about after taking several workshops about putting together a thesis: I want write about diarists. Being one, and being a fan of them and (by and large) the diaries they write, I suspect I’ll be endlessly fascinated. As I think more and more about tackling a thesis in my life and as I read more and more, the actual intent and focus of the thesis will be revealed and who knows? Maybe I’ll actually discover or contribute something to a body of study that is pretty robust already. For now, I’m just reading diaries and biographies of diarists and books about the diary’s role in Western literature and that’s my school right now.

And in my para-research (doesn’t that sound fancy) I have discovered a wonderful poet that I hadn’t known about before: William Soutar. English majors may groan and shake their heads that this person was unknown to me, but cut me some slack: I studied theater in undergrad. Can you quote a line from Major Barbara? Ah-ha! Didn’t think so. (Note to self: Look up pithy line from Major Barbara.)

William Soutar was a Scottish poet and writer who had a rather tragic life. Born in 1898, he contracted a virus when he was in his twenties and this went untreated. By the time he was thirty-two, he was bedridden, quite ill, and essentially paralyzed. He spent fourteen years in bed and died when he was just forty-five.

But he was an incredible poet and writer and refused to let his ill-health take his brain or his passion as his body lay so feeble. He read and read and wrote and wrote and had all kinds of things published. It was said that his bedroom was one of the centers of the 20th Century Scottish Literary Renaissance, due to all his work and all the heavyweight writers that came to hang out with him.

He wrote wonderful poems for children (“the bairnrhymes”) but is maybe best known over here in America for his Diaries of a Dying Man. The diaries he kept for so many years are all in a book that you can buy (because the world is amazing) and just this very morning I wept reading a certain entry. It is such beautiful writing. Soutar was human and he has his moments of despair and frustration and angst, but by and large, he’s just crazy lion-hearted and awesome and so freaking smart that you ache for his situation while you marvel at his talent. Yes, I am slightly in love with William Soutar (no, Yuri does not feel terribly threatened.)

Here, to whet your appetite, two passages from Diaries of a Dying Man, by William Soutar. The first one is the one that made me cry a little this morning over my tea. The second is a favorite so far.

“I wonder if fit mortals realise that infirmity makes the most ordinary actions wonderful. A person, like myself, set aside from the thoroughfare of life can often look on life’s manifestation with a detachment denied the protagonist in the market-place. Common acts become isolated from particular times and places and grow, by recollection, into moments of beauty loved in themselves without desire or regret. Thus everyday phrases can bring to such a watcher a rounded image of loveliness mysteriously coloured by the consciousness that he himself can no longer enact them; phrases such as ‘he lifted a stone’, ‘he stood by the sea’, ‘he walked into the wood’.”

“For some weeks past I have found myself, from time to time, putting out an imaginary hand as if to touch the earth in a comprehensive gesture of love — but I do not deceive myself by these vague stirrings of affection : it is so easy to love a ‘thing’ : one must learn to love people first.”

15 Jul 2014

Perspective, Hard Won.

by | posted in: Day In The Life, New York City | 8
Public domain image from WikiCommons. Tulane cheerleaders, 2008.
Tulane cheerleaders, 2008. Image in the public domain.

The toughest thing about being in a new place is the lack of perspective.

I live in New York City and I have no perspective on this experience yet and won’t have it for some time, because that’s how perspective works.

I look back on my twelve-plus years in Chicago, I see eras. There were the First Years, the rough ones, with their questionable choices and misbehaviors (all with the best of intentions, of course.) Those years contained the Poetry Years, thank goodness, or I might not’ve survived at all. That era, with all its earnest youthful disregard gave way to a better time: the Affianced Years. That was pleasant. I had found someone I cared for deeply and was enough of an adult to pair up in a real way. My foolish choices were slashed down to (almost) nil. And I wasn’t a waitress anymore. Right before the Affianced Years began, I began to be able to make my living as a full-time writer-performer and I clung desperately to that fact. The proclamation was (and has remained) a cornerstone of my entire identity. It probably matters too much, but for me, I can’t do it any other way.

The Marriage Years immediately followed the Affianced ones (they’ll do that) and they overlapped entirely with the era known as When I Was Sick. (I was diagnosed less than a month after I walked down the aisle; surgery was a month later — to the day? — of my wedding.) But inside those years were the Best Theater Years I ever had, making art with the Neo-Futurists.

And then The Divorce. And then Downtown Me. And then I left.

Anyway, all this is to paint — mostly for myself, I have to admit — the picture of what happened back in Illinois. Broad strokes, yes, but it’s chronologically correct.

I’m in the First Years again.

And it’s great here, and I’m not the twenty-one-year-old girl (good grief!) that I was when I had my first round of First Years, but I know full well that I have a whole lot of perspective to make. I will get lost a dozen times. I will be mistaken about the character of this or that person. I will embarrass myself. I will not find my favorite shops for at least 6-12 months. There’s no way I can learn the shortcuts: I don’t even know the longcuts.

I’m not exactly bummed, but tonight, I know too much about not knowing anything at all.

14 Jul 2014

Next Week: “Patchworkshop” at NYC’s Sewing Studio!

by | posted in: Work | 4
It's almost obscenely enticing, isn't it? Sewing Studio, 134 W 29th St, New York, NY 10001. Phone: (646) 961-4747
It’s almost obscenely enticing, isn’t it? Sewing Studio, 134 W 29th St, New York, NY 10001. Phone: (646) 961-4747

See that picture up there?

Add some fabric, some friends, and some patterns to work with, and that’s a lil’ picture of heaven, muchachos.

Next week, I’ll be leading a “Patchworkshop” at NYC’s fabulous, adorable, info-rich Sewing Studio. I’m kinda pinching myself, honestly. Teaching people to quilt in New York City?? Whose life is this?! I feel very grateful. I’m working on all my packets of info, I’ve got a friend at Dear Stella who is making some goodie bags. I’ve got quilts to share. I can’t wait to meet my students.

There are still a couple slots left in the July week-long class; same for the August class but you should not tarry. Here are the deets:

Master Series: “Patchworkshop” with Mary Fons
July 21st-25th (Monday to Friday), 6:30pm-9:00pm; or August 18th-22nd (Monday to Friday), 6:30-9:00pm

“No matter how cool our gadgets are, no matter how fast we can pin images and send files, human beings still want and need handmade quilts. If you’ve ever wanted to make one, this class is for you. Primarily, we’ll focus on what comes first in any quilt: making the patchwork top (you will get some quilting instruction.) You’ll learn “the patchwork quartet” (cutting, sewing, pressing, and ripping); you’ll learn how to properly rotary cut fabric; you’ll get tons of pointers on fabric selection; you’ll construct blocks to either finish or get a beautiful, running start to your very first quilt. (You’ll get lots of quilt history, too, and tons of tips from the pros.) Come learn how to make patchwork — and probably change your life while you’re at it.”

About the instructor: Mary Fons, aside from being an avid quilter, national teacher, on-camera host, author, and magazine editor, is a self-proclaimed “beginner quilter’s BFF” and will never make you feel foolish for not knowing how. Mary is a celebrated quilter and TV host, and the founder of Quilty, a weekly online program for the beginner quilter. For more about Mary, visit MaryFons.com.

Course outline: Full course details will be posted the week of July 14.

Class limit: 10 students
Cost per student: $650
Materials: Bring basic sewing supplies plus a selection of fat quarters: 4-6 light, 4-6 medium, and 4-6 dark. (Bring more if you want!)

13 Jul 2014

The Mornings Are Like This: Home Edition

by | posted in: Day In The Life | 4
Suspense, by Charles Burton Barber, 1894.
Suspense, Charles Burton Barber, 1894.

It all begins at about 6am. It’s gone this way for years, now, with few variations.

1. Wake. Blink. Consider previous day: Was exercise executed? Were healthful comestibles consumed in sane quantities? Was enough work done to avoid panic immediately upon the opening of the eyes? If the answer is “yes” to at least 2 out of 3 of these status questions, optimism is available.

2. Look left. Consider sleeping man. Kiss sleeping man’s shoulder. Sigh with contentment.

3. Rise. Pad into kitchen. Fill kettle. Put kettle on stove. Activate burner.

4. Enter bathroom. Perform noncommittal morning ablutions. Mostly just look in mirror and make faces. Consider birthday next month.

5. Cross back through kitchen. Eye kettle. Prepare tea tray with honey, milk, spoon, mug Rebecca made for me in her pottery class that I love more than life itself, cloth napkin, French press with tea in it. Consider a) cutting back on the tea; b) loving the mug slightly less because it’s a mug for heaven’s sake.

6. Feel generally anxious about day.

7. While waiting for water to boil, flop on couch and pick up something to read. Read a little bit of it before the kettle whistles.

8. Bolt up, leap in three bounds to the kettle to flip the lid so it doesn’t wake Yuri. Pour water into French press. Take tea tray into living room. Set on coffee table. Consider the hurt feelings of the tea tray: coffee gets a whole table.

9. Drink tea and write or read for a good hour. Toward the end of the hour, feel more anxious about day but internally struggle with need to have a few more minutes. Consider taking a short, post-tea nap with sleeping man.

10. Say, “Alllllright” to no one. Get dressed.

11. Begin.

12 Jul 2014

I’ll Be Darned: Baking Soda Wins!

by | posted in: Tips | 8
That's some hot sodium bicarbonate.
That’s some hot sodium bicarbonate.

A poet friend of mine in Chicago used to do a piece about his heritage. Rather than examine his family tree, he focused on behaviors he had picked up over the years and memes that had stuck. His “heritage” was more about the people he knew or had known, rather than dead people he had never met. A certain expression he used came from his dad, for example, and years back he had consciously adopted specific laugh from a kid in school he thought was really cool.

I always liked that piece because it hit on something so true: we are the people we know. We know the things we know and care about the things we care about because of what we pick up from others that we feel looks good on us or works well. It can be a laugh or a political view. A gait. A preference. An entire life path.

There is perhaps no faster meme generator than The New Relationship. Yuri and I are swapping behaviors and ideas and memes right and left. I see it, I feel it; he sees it, he feels it. It’s great fun. (Think of the inside jokes you have with a loved one. That’s meme-swapping.)

Here’s a great example of what I mean by all this:

Yuri has shown me that I never need to buy deodorant ever again.

Wait.

Yuri smells good. And so do I. Neither he nor I are advocating going au natural, here. What he has shown me is that baking soda — pure, straight up sodium bicarbonate — is the best deodorant money can buy. After your shower, you put a little in your paw, maybe with a little water so’s that it’ll stick, and you apply it in those cute armpits of yours and you will not smell. You will stay dry and fresh and you will not have purchased a cake of deodorant at the store that a) smells weird and b) costs a lot and c) has plastic all over it and maybe aluminum or weird stuff inside of it. I’m telling you: baking soda works. It works better than any deodorant I’ve ever tried. I’ve been using it for months, now, and it has not failed me.

The natural deodorants you buy at the store that use baking soda? Pffft! Skip ’em. Not only do those very expensive “all-natural” deodorants not work, they’re just puttin’ lipstick on a pig! (I don’t know if that’s exactly what they’re doing but I have been wanting to use that expression for several days.) Listen to me: you do not need to buy any of these products ever again.

Put. Baking soda. In. Your armpits. Put it in your armpits!!

I’m all worked up. But it’s just that wonderful. Think about the money a person could save over the course of a lifetime because of this tip! If you switch to baking soda, why, together we could save millions! At least a few thousand. That could go to a lot better things, that dough. I don’t know what.

And so it happened that I became a woman who has baking soda in her medicine cabinet. If anyone ever asks me about it, I will say, “Oh, yeah. It’s the best deodorant you can use. Just plain baking soda. I learned that from Yuri.”

And (maybe) you learned it from me.

11 Jul 2014

On Hollywood.

by | posted in: Day In The Life, Rant | 8
This is a violent image.
Am I missing something?

For years, a conflict has raged within me:

Is Hollywood destroying humanity or am I just no fun? 

A couple months ago, my internal struggle was refreshed with the blood of Godzilla, which remains the last movie I saw, in the theater or otherwise.

Yuri and I had a night off, and I was actually the one who suggested we go. I’ve been to the movie theater maybe five times in two years. I completely get that many folks love movies — my sister and her fiance work in the industry and I have tremendous respect for them, their art, and their specific path — but feature films just aren’t my jam. I don’t see a lot of movies like I don’t read a lot of fiction. I’m a documentary-lovin’, non-fiction readin’ real-time junkie. I feel manipulated by film, I guess, and not in a good way. Still, every once in awhile, there’s a film that looks like such pure spectacle, such pure, 21st century American entertainment, I gotta do it. It’s like eating a Cinnabon or a Auntie Anne’s pretzel once every couple of years: indulging feels very wrong/momentarily good. The 2014 remake of Godzilla looked cool from the previews my sister Nan played for me; the monster was so big! The cities were so small!

“Yuri, let’s go see Godzilla.” 

“Seriously?”

We got our tickets and sat down with cups of tea and smuggled chocolate, fully prepared to be entertained. I had an open mind. I really wanted to have fun.

But I didn’t have fun. Because Hollywood sucks. Hollywood creates a facsimile of life for scores of people whose general well-being I care about. Hollywood cheapens the human experience. At its best, Hollywood inspires great floods of emotion that can be cathartic. But at its worst, Hollywood movies are irreverent, disrespectful, and hypnotic. And false. And confusing. And they are all expensive.

My main trouble wasn’t with Godzilla. It was not a great movie, but that’s okay. I was more troubled by the previews, the first one for a Scarlett Johannsen film coming out soon called Lucy. In the preview, we see a clip of Johannsen enduring forced abdominal surgery. The bad guys open her belly and insert something inside of her that she must transport against her will, the thing now being inside her and all. I’ve had multiple abdominal surgeries that might as well have been forced — if I didn’t have them, I’d have died so the choice was nil — and take it from me: There is nothing entertaining about being filleted. The reality of that sucks so much. I realize I have personal experience that most folks do not regarding this plot development in Lucy and clearly, I am going to be more sensitive to seeing such an experience portrayed fictionally, but like…can’t you pretend about something else? There’s so much to choose from.

Like…war. After Lucy, there were several previews for war movies where people were getting creamed right and left. Legs were getting blown off. Men were screaming, men were crying. After that, a preview for Non-Stop, which is about an airplane hijacking. Jet black guns, exploding pieces of airplane, crying women with hysterical, terrorized babies, a rugged Liam Neeson flinging himself backward down the aisle, shooting multiple rounds.

Am I missing something? Why is this entertaining? I’m not being rhetorical. I don’t understand. Surgical procedures, wars, gunfire, terrorist plots on planes, and death are things that create suffering. They are realities of life that require seas of compassion and support to endure and process. It’s not funny to see someone get shot to death on a plane flying at 35,000 feet. It’s terrifying. It should be terrifying. I beg someone to explain to me why people spend millions of dollars to create fictional suffering to last on film forever for people to watch in theaters while they sit eating snacks. Escapism? But how?

Maybe I’m just no fun.

That’s entirely possible! I do feel like I have blind spot, that there’s a “Kick Me” sign on my back and I’m just being snippy and snobby and old and lame. Everyone goes to the movies, right? Folks have preferences, too, and discernment. I shouldn’t say “Hollywood is this” because Hollywood is a lot of things and people and there’s good art that comes out of the place, I realize. But just when I was thinking, “Mary, chill. There is more to the movies than the crassness of Non-Stop,” the last preview presented itself. It was for a movie called The Other Woman, in which three hot blondes are real ornery about a man and exact their revenge on him for his misdeeds. There were boobs everywhere. And toilet humor, which is always better/grosser when there are girls involved, I suppose.

It’s just all so hostile. To be sure, there is great cinema in the world, but this is the stuff the general public is eating, the movies that are “in theaters everywhere starting Friday.” Mere blocks from where I sit, there are art house cinemas and legendary film centers that show incredible stories put to film. But people go see the Godzillas and The Other Womanses in Des Moines because that’s what’s playing there. I grew up not far from Des Moines, so I know. If you don’t have options, how can you discern?

No one should be stopped from making whatever sort of movie they want to make. Advocating for censorship will never be on my list of things to do, as much as I dislike these kinds of movies. I’ll just stay home.

(On my list of things to do, “Take on Hollywood” was also not there. Oh well.)

9 Jul 2014

Well! (Three New York Niceties.)

by | posted in: Day In The Life | 13
That's Pendleton wool, by the way. I'm never leaving this place!
That’s Pendleton wool, by the way. I’m never leaving this place!

Whatever you’ve heard about New Yorkers not being nice, or that they are flat out rude, that is not correct information. Let me share three things that happened in the course of a single day here in the Great Big City:

1. The Scruffy Kids at the Resale Shop Welcomed Me To the Neighborhood
After fully unpacking and settling in, there were a few items of clothing that would not fit in this small apartment’s closets. We actually have kind of a lot of closet space, which is nothing short of luxurious, I know. Still, that weird, never-worn, neon-jacquard-leopard print blazer that sorta fit but not that well? That had to go, along with a couple pairs of shorts and a few dresses that never really worked too well. Off I went to a nearby resale shop, and I engaged with the scruffy kids behind the counter. Well! We had a blast! There was this crazy rapport right off the bat for some reason: I said something funny, they said something funny, and I’m selling my clothes and we’re talking about NYC vs. Chicago and it was just this delightful experience. When I left, we were all on a first-name basis. As I went out the door, the guy with the lip ring said, “Hey, welcome to the ‘hood!” And I was like, “Rock on!!”

2. The Lady Who Held the Door For Me When I Had a Big Box
There was a box. I had to go pick it up. It was huge and heavy — very huge and very heavy. There is a gate to our building. It is a heavy gate with a weird button lock that never works except on the third try. So there I am, balancing this big box, trying to get the code right and I finally do, but then I have real problems. Because I have to hold the box and open the door and get down the stairs. Well! Along comes this older lady and just comes right up and puts her friendly hand on the door to hold it for me and like we’d known each other for years, she goes, “There better be something prreeeeeetty good in that big heavy box!” and I’m like, “It’s quilts!” and she goes, “Well, that’s pretty good!” and I’m like, “Yeah!!” And that was that. (Well, then I took it up three flights of stairs and then that was that.)

3. The Fashion Designer Who Is Giving Me Fabric
Okay, so there’s this fashion designer. I met her when I was in NYC in 2008 for a month, doing the show here with the Neo-Futurists. I was at yoga, and this glamorous girl comes into the studio wearing this stunning cloak. I’m like, “That is a stunning cloak!” and she says, “I made it.” And she told me her name and I went to her website and she was a small operation but her cloak was still too much money for me to buy one. Well! Over the years, do you know what happened? That fashion designer has really gotten to be a big deal! I have seen her name in fashion magazines — big ones, like Elle and stuff! So the other day, I’m walking around the Lower East Side, slightly lost, and I see that this designer has her own storefront. I go in. She’s there. I’m like, “You do NOT remember me, no way, no possibility, but I did meet you and this was years ago and I just wanted to tell you congrats because I’ve seen you sorta rise through the thing, and I am a big fan!” We get to talking and do you know what happened next? She says, “It’s so cool you’re a quilter,” because I told her I’m a quilter, “And I wonder if you’d like these Pendleton wool scraps we have in the back. We were going to make makeup cases from them but it didn’t work out and I wonder if you’d want them.” So I signed a copy of my book and I’m going to take it over there tomorrow and pick up these big bags of wool — Pendleton wool — scraps!

Can you believe this place??

I love it here!

 

8 Jul 2014

On Being Naked and Sweaty In Public.

by | posted in: Day In The Life, New York City | 2
This photo was filed in WikiCommons under "Sweaty" for the sweaty nose of the cow. I think the picture works in every way for this post.
This photo was filed in WikiCommons under “Sweaty” for the sweaty nose of the cow. Perfect!

 

I’m all up in my Bikram yoga now that I’m mostly settled, practicing with regularity at the small-but-mighty Bikram studio on the Lower East Side. What this means is that numerous times a week — every day if I have my way — I am packed like a sardine in a can of sardines, if sardines were naked and sweaty and practicing yoga on the Lower East Side. You know, sardines could aptly be described as both naked and sweaty; alas, being dead fish, they do not practice yoga, so my little simile must only go some of the distance for us.

When I say I’m naked and sweaty and Sardinian (?), I’m talking about my state post yoga class. During the yoga, we students wear clothes* in the hot room. (For the uninitiated: Bikram yoga is a 90-minute yoga series of 26 postures and two breathing exercises practiced in a room heated to 105-degrees. And yes, you pay for this on purpose.) After class, when the very will to live has been nearly wrung out of us and we drag our taut, glowy, and utterly eviscerated carcasses out of there, that’s when it gets real.

There is no space in Manhattan. None to spare. The women’s locker/shower/changing room in the yoga studio is maybe…500 feet square? It’s small. You’ve got a bank of lockers, two shower stalls, one bathroom, and a lot of sweaty, naked women attempting to change out of sopping wet yoga togs into normal street clothes, which is tough because a) there is nowhere to bend over to get your wet leg into your jeans and b) getting a wet leg into jeans in any room is like trying to give a sick cat ear infection medicine: extremely, extremely difficult and exasperating. You want someone else to do it for you really, really bad. But no one ever will. It’s your cat. It’s your leg.

I have bumped a bare bottom with my own bare bottom. Oh, it’s true! I’ve turned my head just as a gal was exiting the shower stall and whammo! the lass’s entire self, just hey-how-are-ya, right there in my letterbox. I’m pretty cool with bodies, so none of this exactly bothers me unless I think about the fact that we are all animals, because then I think about chicken coops and pig pens and cattle shoots and that’s bad. All those animals are naked, too, so I’ll be trying to pull denim up over a wet booty (mine) and suddenly I’m having the sixth existential crisis of the day — and I usually take the noon class!

The worst, though, is when there’s zydeco music playing.

The studio is great in the way they just hit “play” on some endless music mix in the sky/on the web and you never know what you’ll get. Sometimes, you’re headed into the hot room to the dulcet tones of jock rock; sometimes you get wailing house divas. Sometimes it’s all spa music in the changing room; other times you get hip-hop. I love the variety. But once, when the class that had just been tortured was changing to leave and the next class was arriving to go into the heat, when everyone was hopping around on one foot, boobies out, sweat flinging this way and that, effing zydeco music came through the speakers and I thought I might die of shame. Surely, someone, somewhere (God?) was laughing hysterically at all this. It would be impossible to come up with a soundtrack less becoming to a roomful of naked, hopping women.

That day, I ran.

*”Clothes” is mostly right. You wears small slingshots of fabric to cover the bits and that goes for the men and the women alike. This state of underdress makes for excellent scenery or not-so-excellent scenery, depending on where you’re standing and what you’re into.

 

 

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